Lorraine Smith Robbins’ PH Story

March 08,2017

I live in Warrington, PA

I first heard the words Pulmonary Hypertension on November 13th, 2012.

To say our lives have been challenged is an understatement

I had been complaining to my doctor of fatigue and shortness of breath for almost three years. Initially I was told I was just a tired mom of two young girls. Take better care of yourself – put yourself first!

Many appointments, weight loss attempts, an exercise trainer, and several misdiagnoses later, I was sent for a CT scan of my lungs.

My primary care called me at 7:30 am on November 13th and said she’d scheduled me for the scan at 9am. I had been to see her the night before with more complaints, and she sent me home with a new inhaler to try.

Dr. said she thought about me all night, and was concerned I might have blood clots in my lungs causing my shortness of breath. I really had her stumped.

Well, shortly after completing the scan she pulled me into an office and told me I had PH. I was to go see one of the top cardiologists at our local hospital.

I thought ‘Great! Finally a name for it! Give me the pill, the surgery! Whatever! Let’s fix this!’

My 4 plus years’ journey so far has been full of ups and downs. I count three medications, 24/7 supplemental oxygen, a fantastic support system, and staying positive as my lifesavers and best medicine.

I have Idiopathic Pulmonary Arterial Hypertension – it is not secondary to any other illness. There is no known reason for why I have it, nor is there a cure.

A year after my diagnosis, my husband was diagnosed with Colon Cancer. To say our lives have been challenged is an understatement. But I try to keep our blessings in perspective count them everyday!

I could go on, but I’m trying to keep my introduction brief. Thank you, Team PHenomenal Hope for all you do to raise awareness for Pulmonary Hypertension.

There is no known reason for why I have it, nor is there a cure

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