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Stories of PH

Home > 2017 > August

2017 August Patient Story

Deborah Webster's PH Story

August 30,2017

I’m Deborah and this is my PH story. In the months leading up to this life changing diagnosis, I had Read More...

Hap Farber at the 2017 Rad am Ring

Hap Farber's 2017 Rad am Ring Reflections

August 28,2017

I have spent two weeks thinking about the experience at Rad am Ring; probably more than I should have. But, Read More...

a video still of Chris Field

Plans for a Great 2018 - August Letter from the Director

August 24,2017

Summer is just about behind us! We've covered a great deal of distance so far - in the last 8 Read More...

Clermont FL Triathlon

Kathleen Richardson's Race Report: My First Triathlon

August 24,2017

If you had asked me a year ago if I would ever consider doing a Sprint Triathlon, I would have Read More...

Brooklyn Clasby

What #LetMeBeYourLungs Means To Us: The Clasby Family

August 22,2017

Our 10 year old daughter, Brooklyn, was diagnosed with Idiopathic Pulmonary Hypertension when she was 3 years old. After complaining Read More...

What #LetMeBeYourLungs Means To Me: Carl Hicks

August 21,2017

The “Let Me Be Your Lungs Program”, (LMBYL) of Team Phenomenal Hope is one of my most favorite patient advocacy Read More...

IM Muskoka

Faris Kindilchie's Race Report: IRONMAN Muskoka

August 17,2017

  This was my first half distance Ironman race since last September, so I was a bit anxious traveling into Read More...

Brooke Evans with her family

Brooke Evans PH Story

August 16,2017

Hi, my name is Brooke Evans. I live in Australia and here is my PH journey thus far. I was Read More...

Jonathan Rigby, Steadymed CEO

Team PHenomenal Hope Roster of Global Athletes Reaches 100

August 14,2017

Team PHenomenal Hope recently hit a major milestone with the recruitment of its 100th global endurance athlete. The nonprofit’s newest Read More...

abigal lynn howard

Abigail Lynn Howard's PH Story

August 14,2017

My Name is Mandy Howard, my daughter is Abigail Lynn Howard. She was diagnosed when she was 8 months old Read More...

Wendy Tommy Rad Am Ring

Rad Am Ring 2017: A Patient's Perspective

August 07,2017

When I got my diagnosis in 2009, I wasn’t the only one affected by this disease. My partner Erik, my Read More...

Sarah Matthews racing in 2017 Rad am Ring in Germany

2017 Rad am Ring Race Report from Sarah Matthews

August 04,2017

I have just recovered from an incredible weekend at Ram am Ring with Team PHenomenal Hope. I signed up for Read More...

Katrin Hetebrügge at the 2017 Rad am Ring race course

2017 Rad Am Ring Report by Katrin Hetebrügge

August 03,2017

What do you get when you put thousands of cyclists onto a formula one race course, with thousands of mini Read More...

Teammates at 2017 Rad am Ring

Rad Am Ring 2017 and the realities of ultra racing

August 02,2017

This past weekend I raced my bike with 24 other members of Team PHenomenal Hope. We raced 5 teams of Read More...

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