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Stories of PH

Home > 2018 > May

Giving Back to the PH Community After My Diagnosis: Fran Etzkorn

May 31,2018

I have tried to write this story in the past, but have not been able to put it into words. Read More...

The Power of Inspiration #LetMeBeYourLungs—An Athlete’s Perspective

May 29,2018

As an athlete of Team PHenomenal Hope, I have the opportunity to race not only for Team PH, raising awareness Read More...

Global Community: Letter from the Director

May 23,2018

Team PHenomenal Hope is truly a global community that embraces the pulmonary hypertension (PH) community both domestically and internationally. We Read More...

Solar Charger Packing Party

May 22,2018

On Monday, May 21st, members of the PH community came together at Elmhurst Hospital in Elmhurst, Ill. to pack 400 Read More...

Climbing Mountains and Making Memories at the Silver State 508

May 21,2018

The 508 September 15-17, 2017 Reno, Nevada I am an ultra cyclist, and I proudly race for Team PHenomenal Hope. Read More...

I did it for Mara: Cathy MacKinnon's Race Report

May 16,2018

I’m struggling to find the words to recap the excitement and emotion of my #LetMeBeYourLungs race day. We had a Read More...

Announcing Team PH's Solar Charger Initiative

May 14,2018

In the fall of 2017, Hurricanes Harvey, Irma, and Maria wreaked havoc on members of our PH community in Texas, Read More...

26.2 Miles of Cold and Rain: Boston Marathon Recap

May 10,2018

This was the 122nd Boston Marathon. They hold it every year on Patriots Day, which commemorates the Battles of Lexington Read More...

LMBYL story

One Year After My Lung Transplant: Madison Brenton

May 09,2018

It’s hard to believe it has been a year since I received my life-saving, double-lung transplant. What a crazy year Read More...

Overcoming Obstacles That Came With My Diagnosis: Naomi Magalhães

May 07,2018

Hello! My name is Naomi. I’m 30 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension (PAH) in August Read More...

My Daughter's PH Doesn't Keep Her Down: Denise Berti

May 04,2018

When we learned that our daughter, Gabi, had Pulmonary Hypertension (PH), she was nine years old, had cyanosis of the Read More...

Finding the Right Treatment For Me: Vanessa Zagato

May 03,2018

My name is Vanessa. I live in Botucatu, in the southeastern region of Brazil, about 140 miles from São Paulo. Read More...

Finding Light After My Diagnosis: Berenice Aldaco

May 02,2018

My name is Lizeth Berenice Aldaco. I’m 29 years old, and I’m from Navojoa, Sonora, Mexico. I was diagnosed two Read More...

"Can" Overshadows the "Cannot"

May 01,2018

I loved jumping hurdles in gym class. I was 12 and knew my heart was bigger than average due to Read More...

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