I am a Medical Unicorn: Jessica Kiser
March 17,2020
I was only 26 when I was diagnosed with pulmonary arterial hypertension (PAH) associated with hereditary hemorrhagic telangiectasia (HHT). I Read More...
Moving Cross Country with PH: Jean Robart
March 13,2020
My journey with pulmonary hypertension (PH) began a few years after I first heard the words pulmonary hypertension. I was Read More...
The Black Cloud Lifted: Becky Mack
March 10,2020
2015 was not a good year. Not a good year at all. "Annus horribilis," as Queen Elizabeth would put it. Read More...
I love my Support Group: Irene Dellaro
March 03,2020
My journey with pulmonary hypertension (PH) started back in September of 2010. I was laying in my bed with a Read More...
Here to Bring you Hope: Nikki Richard
February 27,2020
My story starts like most patients living with pulmonary arterial hypertension (PAH). One day I became short of breath without Read More...
A Rare Community: Letter from the Director
February 20,2020
February 29th is Rare Disease Day. It’s a day when we come together as a community to raise awareness, advocate, Read More...
Thriving with PH: Shannon Morrison
February 18,2020
My daughter Shannon is an eight year old identical twin with a vivacious passion for life and incredible strength. When Read More...
Years of Misdiagnosis: Tiffany Ray
February 13,2020
I was diagnosed with PH after years of misdiagnosis. When my symptoms started, I was sent to a psychologist for Read More...
Lifestyle Changes: Trace Cluck
February 11,2020
Living with complications from CTEPH has been difficult to say the least. In February of 2019 I had to step Read More...
30 Years of Dormancy: Linda Cantrell
February 04,2020
I was born with pulmonary hypertension. Unlike the majority of people with PH, mine didn’t develop over time. When I Read More...
My Daughter, Diagnosed at Eight Months Old: Amanda Howard
January 28,2020
My name is Amanda Howard. I first learned about pulmonary arterial hypertension (PAH) when my daughter Abby was eight months Read More...
Letter from the Director: Join us in 2020
January 24,2020
Happy New Year! 2020 is the start of Team PHenomenal Hope’s second decade serving the PH community. We have been Read More...
Iceman Race Report: Julie Tracy
January 21,2020
Iceman! I was a little nervous (sort of, not really?) for this race, mostly just because I have little to Read More...
My PAH Diagnosis: Suzanne Miller
January 16,2020
When I was 16 I discovered the "Diet Doctor." I lived in an affluent community where vanity was more important Read More...
Breathing Life with CTEPH: Kristin McCoy
January 14,2020
The first part of my life was awesome, for the most part. I joined the rescue squad and became an Read More...