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Racing to make a difference in the fight against pulmonary hypertension
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Stories of PH

Home > 2023

A Mother's Intuition

November 21,2023

My oldest child Abby was almost eight months old. I had been taking her to the doctor telling them something Read More...

Addie Kozak: Four Years Old and Battling PH

November 15,2023

My daughter Adeline (Addie) was born with hypoplastic left heart syndrome (HLHS). HLHS is a complex and rare heart defect Read More...

Louisa McCance: Born with PH

November 10,2023

Our sweet, beautiful daughter Louisa was born in August of 2021. Although Louisa's Down syndrome and congenital heart disease diagnoses Read More...

PH Awareness Month 2023

October 31,2023

November is Pulmonary Hypertensions Awareness Month and, as always, we have something for everyone! See below all the ways you Read More...

Let Me Be Your Lungs Spotlight: Carl and Zoe

October 31,2023

Team PH board member, Carl Hicks, has been closely involved in the pulmonary hypertension community for many years. His initiation Read More...

PH Patient Perspective Manuscript

October 30,2023

Team PH is pleased to announce the completion of the manuscipt with titled, Patient perspectives on pulmonary hypertension in the Read More...

Reflections from the Executive Director: Leslie Orlovsky

August 31,2023

It is with a full heart and a deep sense of gratitude that I share this message. Since joining the Read More...

Dr. Sue Gu named Team PH's 2023 Research Award Winner

August 31,2023

Team PHenomenal Hope is proud to announce 2023's recipient of the PHenomenal Impact Research Award, Dr. Sue Gu of the Read More...

Team PHenomenal Hope PH Awareness Webinar Series - Fall 2023

August 30,2023

Team PH will celebrate PH Awareness Month, November, with a series of accessible educational webinars (via Zoom) for people living Read More...

Team PH Welcomes New Staff Members

July 28,2023

Because of the support of our community, Team PH has been able to grow our staff and resources in recent Read More...

PHun Day for Kids with PH

June 28,2023

We at Team PH are excited to announce two events for our pulmonary hypertension kiddos! PHun Day is a free Read More...

PH 5K Recap: Kayla Frattini

May 30,2023

Wow! We have reached ten years of the PHenomenal Hope 5K in Pittsburgh, PA! What an unbelievable milestone to celebrate Read More...

PHenomenal Hope 2023: Knowledge, Research & Advocacy in PH

May 19,2023

Team PHenomenal Hope is proud to announce the inaugural PHenomenal Hope 2023: Knowledge, Research & Advocacy in PH symposium. Join Read More...

Race Report: 18 Hours of Fruita

May 15,2023

What do 18 hours on a mountain bike in Fruita add up to? 134.8 miles, 8517 feet of climbing, over Read More...

Race Report: Kathleen Richardson

April 27,2023

I am grateful for the chance to be a member of Team PHenomenal Hope and join in the mission to Read More...

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Complimentary Book Offer for Our Patient Community

Receive a free copy of This Big Ol’ Heart of Mine by Stacey McCarthy

Thanks to a generous donation from a member of our Board of Directors, we are honored to offer a free paperback copy of board member and fellow patient Stacey McCarthy’s moving book to any patient in our community.

In This Big Ol’ Heart of Mine, Stacey shares her deeply personal journey living with Pulmonary Hypertension—finding hope, faith, and unexpected joy through chronic illness, advocacy, and living life to the fullest.

Request your free copy below:

Stacey's Book

Limit one copy per patient while supplies last.