These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
Diagnosis, Blood Thinners, and PTE: Tamara Moffett
My name is Tamara, I’m 33 years old. On Christmas Eve of 2016, I attempted to walk my dog, but Read More...
Always with Faith, Determination, and Effort: Erika Prieto
I am Erika Prieto, a life fighter since I was diagnosed with pulmonary arterial hypertension, a rare disease that dangerously Read More...
Navigating My PAH Journey: Judy Moreland
"I'm freezing and can't feel my hands.” This was my first memory I have that I was different from other Read More...
PH Secondary to Scleroderma: Bridgette Redfield
My name is Bridgette Redfield, I'm 46 years old. In 2015 I kept having shortness of breath. When walk coming Read More...
My CTEPH Diagnosis: Angela Kerber
It was May 2018 and I had just turned 49. Our cold Colorado spring was quickly turning into a beautiful Read More...
I Believe in the Power of our Minds: Nicole Hogan-Williams
Last February I was diagnosed with pulmonary arterial hypertension. I thought I was just over-stressed and possibly just needed to Read More...
Advocating for Yourself: Trudy Seidel
It got to be routine going to the doctor only to be diagnosed with bronchitis over and over. Every now Read More...
My Road to Transplant and Recovery from IPAH: Dan Kolopajlo
My name is Daniel Kolopajlo and I am 56 years old. I was diagnosed with functional class four, idopathic pulmonary Read More...
A CTEPH Diagnosis that Changed my Life: Crystal Macneill
Kansas City weather was starting to change from the cold to much warmer. It was May 1, 2018, my son’s Read More...
Diagnosis: It’s Just Stress
It was 2008. I had just spent the weekend at Big Bear Lake in the San Bernardino Mountains with my Read More...
My CTEPH Story: Colleen McGuire
My CTEPH story started the summer of 2018. I worked for a restaurant chain that had made big promises to Read More...
Heather Kauffman's PH Story
When I was just seven years old, I lost my best friend to pulmonary hypertension. BJ was diagnosed just nine Read More...
Not Your Typical PH Story: Don Newman
My PH story is not your typical PH story. But whose is, right? Anyway, mine starts in late 1999, around Read More...
Becoming a PH Family
November 11, 2015 would be the first time we would hear the two words that would forever change our lives. Read More...
Kayleigh's New Normal
Kayleigh is 13 going on 21. She's in the eighth grade and plays clarinet in her school band (strengthening her Read More...
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