These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.

My PH Story: Tarsha Walker

August 07,2019

My name is Tarsha Walker. I’m 42 years old. I was diagnosed with pulmonary hypertension and CTEPH on May 9th Read More...

I Thought It Was Job Stress: Cheryl Geary-Rothenberg

July 17,2019

My name is Cheryl Geary-Rothenberg and I was born in 1972 in western New York. As a child, I was Read More...

Going Places: Debra Manahan

July 10,2019

This disease has changed my life. From having oxygen only when I exert myself, to now 24/7. Dealing with the Read More...

Misdiagnosed: Becky Mack's PH Story

July 02,2019

I have asthma. Nope. I have bronchitis. Nope. I'm out of shape. Nope. I just need to exercise more. Nope. Read More...

My Magic is Never Giving Up: Ashley Horton

June 18,2019

Four years ago I was diagnosed with idiopathic pulmonary arterial hypertension, just two weeks before my 26th birthday. It started Read More...

Tammy Nesmith-Bernard: Was it scleroderma?

June 12,2019

My name is Tammy S. Nesmith-Bernard. My PH story begins when I was walking up the stairs of a train Read More...

A Long and Winding Road: Kathy Anderson

June 06,2019

My story is a long and winding road. Currently I am going through several rounds balloon angioplasties in my lungs. Read More...

She Couldn't, But Now She Can: Tatiana Ranftl

May 02,2019

Tatiana was three months shy of her sixth birthday when she was diagnosed with idiopathic pulmonary hypertension. Before her diagnosis Read More...

Treated for Asthma Years Before My Diagnosis: Helen Ardiente

April 17,2019

My name is Helen Ardiente. I am 65 years old. I was diagnosed with pulmonary hypertension in 2015 by Dr. Read More...

My Journey to a CTEPH Diagnosis: Trace Cluck

April 10,2019

My story with PH began years ago. In 2005 or 2006 I was misdiagnosed with pneumonia, bronchitis and asthma. I Read More...

PHighting IPAH One Day at a Time: Heather Dean

March 20,2019

My name is Heather Dean and I am 33 years old. In December 2015, I was in a car accident Read More...

18 Year Since Diagnosis: Kim Arndt

March 06,2019

In September of 2001 after a RHC, I was sitting with my husband in a curtained off room at Johns Read More...

My Journey Has Just Begun: Rebecca Hamilton

February 27,2019

My name is Rebecca Hamilton and I’m from Stow, Ohio. I’m a 42 year old mother of four. I’m married Read More...

I Choose to Enjoy Life: Gayle Macis

February 06,2019

More than six years ago, I was taking care of my parents, not realizing I had a medical issue. I Read More...

I am Grateful: Nicole's Diagnosis Anniversary

January 22,2019

January 22nd is a very emotional day for our family. It was on this day in 2010 that we heard Read More...