These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
I am a Warrior: Margaret Phelps
January 14,2019
I am a warrior, and you are losing, PH. In 2007, I began to feel the effects of what pulmonary Read More...
I Cut Negativity Out: Elisa Lipnick
January 03,2019
Seven years ago I noticed I was becoming short of breath at work. I was an assistant manager in a Read More...
Those Flowers Will Bloom With Beauty: Dawn Taylor's PH Journey
December 18,2018
I'm going to take you around the world. It felt like a heart attack. Or maybe it's a really bad Read More...
The Unmet Needs Fund Helped Haylee: Jess York
November 08,2018
Our daughter, Haylee, is six and has been living with pulmonary hypertension (PH) for three years. This diagnosis changed our Read More...
My Journey with Pulmonary Arterial Hypertension: Lynn Bastian
October 18,2018
My name is Lynn Bastian. I am 64 years old, married, and have three daughters and six grandchildren. On October Read More...
There is Life After Diagnosis: Alex Flipse
October 16,2018
In 1996, I was a 25-year-old young, frazzled, scared, and overwhelmed mom. I have three daughters, who at the time Read More...
Changing My Diet to Manage My Disease: Jimmy Wilson
October 11,2018
Up until May of 2017, I was a husband, father, and deputy sheriff. On May 19 of that year, I Read More...
Don't Rush Things: Terry Jones
September 19,2018
I remember that day, September 23, 2009. I was 61, and after several years of breathing problems and being treated Read More...
A Strong and Positive Woman: Carmencita Lozada
September 17,2018
My pulmonary hypertension (PH) journey started eleven years ago. It has been one of good and bad experiences, feeling different Read More...
Eight Years Since Diagnosis: Valerie Speck
September 12,2018
My journey with pulmonary hypertension (PH) began more than eight years ago. I remember when the doctor told me I Read More...
Pedaling My Way Through Life Post-Transplant: Camille Frede
August 23,2018
Biking has been in my family for as long as I can remember. It all started with my mother and Read More...
Haylee York's PH Story
July 23,2018
In November of 2015, we heard the words that would forever change everything about our lives—pulmonary hypertension (PH). Suddenly, we Read More...
What PAH Means to Our Family: Martha Torres
July 18,2018
When you meet my son, Daniel, he looks like any preteen sitting on his bed in his room playing video Read More...
Diagnosed with IPH at Three Years Old: Ella Jeffery's PH Story
July 16,2018
My name is Ashley Jeffery, and my daughter’s name is Gabriella Jeffery. She is three years old and has severe Read More...
My PH Story: Shaye Wallace
June 29,2018
Shaye just turned 18 years old and lives in Houston, Texas. Diagnosed with pulmonary hypertension (PH) when she was nine, Read More...
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