These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.

I Cut Negativity Out: Elisa Lipnick

January 03,2019

Seven years ago I noticed I was becoming short of breath at work. I was an assistant manager in a Read More...

Those Flowers Will Bloom With Beauty: Dawn Taylor's PH Journey

December 18,2018

I'm going to take you around the world. It felt like a heart attack. Or maybe it's a really bad Read More...

The Unmet Needs Fund Helped Haylee: Jess York

November 08,2018

Our daughter, Haylee, is six and has been living with pulmonary hypertension (PH) for three years. This diagnosis changed our Read More...

My Journey with Pulmonary Arterial Hypertension: Lynn Bastian

October 18,2018

My name is Lynn Bastian. I am 64 years old, married, and have three daughters and six grandchildren. On October Read More...

There is Life After Diagnosis: Alex Flipse

October 16,2018

In 1996, I was a 25-year-old young, frazzled, scared, and overwhelmed mom. I have three daughters, who at the time Read More...

Changing My Diet to Manage My Disease: Jimmy Wilson

October 11,2018

Up until May of 2017, I was a husband, father, and deputy sheriff. On May 19 of that year, I Read More...

Don't Rush Things: Terry Jones

September 19,2018

I remember that day, September 23, 2009. I was 61, and after several years of breathing problems and being treated Read More...

A Strong and Positive Woman: Carmencita Lozada

September 17,2018

My pulmonary hypertension (PH) journey started eleven years ago. It has been one of good and bad experiences, feeling different Read More...

Eight Years Since Diagnosis: Valerie Speck

September 12,2018

My journey with pulmonary hypertension (PH) began more than eight years ago. I remember when the doctor told me I Read More...

Pedaling My Way Through Life Post-Transplant: Camille Frede

August 23,2018

Biking has been in my family for as long as I can remember. It all started with my mother and Read More...

Haylee York's PH Story

July 23,2018

In November of 2015, we heard the words that would forever change everything about our lives—pulmonary hypertension (PH). Suddenly, we Read More...

What PAH Means to Our Family: Martha Torres

July 18,2018

When you meet my son, Daniel, he looks like any preteen sitting on his bed in his room playing video Read More...

Diagnosed with IPH at Three Years Old: Ella Jeffery's PH Story

July 16,2018

My name is Ashley Jeffery, and my daughter’s name is Gabriella Jeffery. She is three years old and has severe Read More...

My PH Story: Shaye Wallace

June 29,2018

Shaye just turned 18 years old and lives in Houston, Texas. Diagnosed with pulmonary hypertension (PH) when she was nine, Read More...

Without Electricity for Eight Months: Marinelly Ayala's Hurricane Story

June 26,2018

I was diagnosed with this condition a week before Hurricane Irma hit. After the scourge of the previous hurricane, Maria, Read More...