These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
Without Electricity for Eight Months: Marinelly Ayala's Hurricane Story
June 26,2018
I was diagnosed with this condition a week before Hurricane Irma hit. After the scourge of the previous hurricane, Maria, Read More...
A Positive Attitude: Patti Smardz
June 25,2018
On December 18, 2014, exactly one week before Christmas, I was laying in a hospital bed. I couldn't breathe. I Read More...
Beverly Earley: My Diagnosis and Weight-Loss Journey
June 07,2018
In 1997, after getting very dizzy, feeling exhausted, and becoming out of breath from just walking and talking, I finally Read More...
Giving Back to the PH Community After My Diagnosis: Fran Etzkorn
May 31,2018
I have tried to write this story in the past, but have not been able to put it into words. Read More...
One Year After My Lung Transplant: Madison Brenton
May 09,2018
It’s hard to believe it has been a year since I received my life-saving, double-lung transplant. What a crazy year Read More...
Overcoming Obstacles That Came With My Diagnosis: Naomi Magalhães
May 07,2018
Hello! My name is Naomi. I’m 30 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension (PAH) in August Read More...
My Daughter's PH Doesn't Keep Her Down: Denise Berti
May 04,2018
When we learned that our daughter, Gabi, had Pulmonary Hypertension (PH), she was nine years old, had cyanosis of the Read More...
Finding the Right Treatment For Me: Vanessa Zagato
May 03,2018
My name is Vanessa. I live in Botucatu, in the southeastern region of Brazil, about 140 miles from São Paulo. Read More...
Finding Light After My Diagnosis: Berenice Aldaco
May 02,2018
My name is Lizeth Berenice Aldaco. I’m 29 years old, and I’m from Navojoa, Sonora, Mexico. I was diagnosed two Read More...
"Can" Overshadows the "Cannot"
May 01,2018
I loved jumping hurdles in gym class. I was 12 and knew my heart was bigger than average due to Read More...
Uncovering My PAH: Kim Foulston
April 30,2018
Hi, my name is Kim Foulston, and I am 44 years old. I have not been a stranger over the Read More...
In Loving Memory of Roné Uren
April 27,2018
Roné was diagnosed with pulmonary hypertension (PH) in March 2012. She had symptoms of fatigue, shortness breath, and increased heart Read More...
Nicolene Müller: Fighting for Better Treatment
April 26,2018
Pulmonary arterial hypertension (PAH) is a chronic and currently incurable disease, in which the right side of the heart works Read More...
Diagnosed 18 Years Ago: How Living with PH has Changed
April 25,2018
My name is Sandra Small, and I am 60 years old. I have a daughter, Shanna, who is 34, and Read More...
My Son Eben's 101 Days in the Hospital
April 23,2018
My son Eben was born with a condition called Bochdalek Hernia, in which there is a hole in the diaphragm Read More...
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