These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
Ashley Schroeder's PH Story
March 06,2017
My name is Ashley Schroeder and I am 33 years old. I never considered myself an emotionally strong person. You Read More...
Billie Jensen's PH Story
March 06,2017
Hi my name is Billie Jensen. I am 35 years old and was diagnosed 3 years ago at age 32 Read More...
Janet Mabe's PH Story
March 06,2017
My name is Janet Mabe. I have three grown daughters and five beautiful granddaughters. I live in Thomasville, NC, the Read More...
Jennifer Hampton's PH Story
March 06,2017
I was on a summer vacation with my husband and kids. My son was giving me a hard time because Read More...
Katrin Hetebruegge's PH Story
March 06,2017
#LetMeBeYourLungs – I liked this slogan by Team PH initially! So I thought that I´d like to use it myself. Read More...
Krista Cummings's PH Story
March 06,2017
Living with PH isn't for the weak, it's not for the strong either. It's truly for no one. PH is Read More...
Suzanne Potterat's PH Story
March 06,2017
My name is Suzanne Potterat and I am from Australia. I live in ACT and I have been diagnosed with Read More...
Teresa Nelson's PH Story
March 06,2017
How did I do it? Really, how did I do it? I raised two wonderful children. I kept a clean Read More...
The 2016 Horrible Hundred is Over!
November 25,2016
Joseph Richardson And we survived. 100+ miles. 4000+ feet of vertical climbing. And after seven hours on our bikes, Joe, Read More...
Ornah Levy Broome's PH Story
November 21,2016
In the summer of 2008 I weighed 500lbs. I was swimming a mile to a mile and a half each Read More...
Jamie Graham
April 26,2016
My name is Jamie Graham. I am 48 years old, married with two children. My son, Lucas, is 15 and Read More...
David Grady
April 05,2016
My name is David Grady. I was diagnosed with Pulmonary Hypertension June 18, 2008. Prior to my diagnosis, I had Read More...
Cynthia Carr
April 04,2016
Hi, my name is Cynthia and I have PH. I also have scleroderma, Sjogrens and Raynauds. I probably had PH Read More...
Vicky's Story
April 01,2016
Hi. I'm Vicky and my story probably started ten or more years before I was finally diagnosed with the first disease that Read More...
Deanna Modzelewski
March 31,2016
For as long as I can remember, probably since high school, I have always hated stairs and walking up hills. I Read More...