These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
Diane Kowalik
March 31,2016
By the time I was 6 months old, the pediatrician could tell my heart sounds were not normal, and sent me to Children’s Hospital Read More...
Dan Kolopajlo
March 20,2016
A little background on who I am, what I’ve done in my life, where I’ve been and where I am Read More...
Merle Reeseman
March 16,2016
I am a current survivor of a rare and devastating lung and heart disease known as Pulmonary Hypertension – it Read More...
Janice Janus
March 15,2016
My Name is Janice Janus, I am 44 years old and my journey is a lifelong one living with and Read More...
Becca Hubbard
March 14,2016
Unlike many PH patients, my diagnosis came quickly and out of the blue. Over about a two-week period, I noticed Read More...
Anna Lindner
March 11,2016
My name is Anna Lindner and I am 13 years old. I was diagnosed with pulmonary hypertension when I was Read More...
Ashley L Hanks
February 16,2016
In 2007, at the age of 24, I was diagnosed with a massive pulmonary embolism. After spending 10 days in Read More...
Janice Ralton
February 04,2016
In 2004 I was diagnosed with diabetes 2. I was told to watch my diet and to exercise. Little did Read More...
Sandra E's Story
January 15,2016
Three years have passed since I was diagnosed with Pulmonary Arterial Hypertension (PAH) and it has been interesting to say Read More...
Gary Osborne's PH Story
January 13,2016
Gary O. Auckland, New Zealand I had been feeling unfit for a while but exercise was not helping, in fact Read More...
Philippa's Story
January 06,2016
In 2012, we met a special young woman at the PHA International Conference. Her name is Philippa. We talked with Read More...
Jeannie Tom: A Transformation
December 17,2015
Upon retirement from elementary teaching in June 2008, my motto was to be "free as the wind"; to travel and Read More...
Clare Bello Ogden
November 16,2015
My name is Clare Bello Ogden and I have survived blood clots in both my lungs. Such a small sentence, Read More...
Diane Ramirez
October 29,2015
Living Many Years I was diagnosed with PH in 1987. I had been sick for close to three years before Read More...
Kathleen Richardson
July 30,2015
Kathleen's Journey: Pre-Diagnosis I was diagnosed with PH at age 38. At diagnosis, I wasn't sure if I would make Read More...