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Stories of PH

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Living a Big Life With PH: Stacey McCarthy Shares Her Story

August 18,2026

When Stacey McCarthy was diagnosed with pulmonary hypertension (PH), she was forced to confront a future filled with uncertainty. Over Read More...

Welcoming Two Incredible New Team Members to PHenomenal Hope

July 28,2026

At PHenomenal Hope, our ability to serve the pulmonary hypertension community is only as strong as the people behind our Read More...

From Breathless to Breaking Barriers: Lindsay's Marathon Journey with PAH

August 15,2025

At just 23 years old, Lindsay knew something wasn’t right. Shortness of breath. Fatigue. And then, frighteningly, episodes of passing Read More...

Team PH's 2025 Research Symposium

July 23,2025

Register here.Team PHenomenal Hope is excited to announce the third annual PHenomenal Hope Research Symposium: Knowledge, Research & Advocacy in Read More...

Facing Hard Things: A Grand Journey of Strength, Intention, and Hope

July 14,2025

In January of 2024, James and Jes Ashbaucher, fellow Team PHenomenal Hope teammates, were blindsided by a life-changing diagnosis: multiple Read More...

A Conversation with Dr. Hap Farber, Team PH's New Chief Medical Officer

May 16,2025

Dr. Hap Farber isn’t just a renowned pulmonologist, PH specialist, and director of the Pulmonary Embolism Response Team (PERT) at Read More...

PH Associated with Left Heart Failure: A Recap of Data Shared at WSPH 2025

March 24,2025

In the second video of our series recapping data shared at World Symposia on Pulmonary Hypertension (WSPH), Dr. Bradley Maron Read More...

Date Announced for the 2nd Annual Where is EB? 5K

March 03,2025

Surprise! Mark your calendar for the 2nd Annual Where is EB? 5K and fundraiser in Santa Monica on Sunday, September Read More...

Nanette and Lenise: Long Lost Cousins Reunited

February 18,2025

Nanette Halliburton and Lenise Whitley are cousins. They didn't find each other until they were adults, but they bonded quickly and Read More...

Race Report: Grand Canyon Rim to Rim

November 12,2024

Just more than 13 months ago a dear friend of mine, April Welch, told me about this thing called the Read More...

PHun Days with Team PH

September 26,2024

Bring your PH warrior kiddo to the final Colorado Rockies game of the season at no cost to you! Team Read More...

Let Me Be Your Lungs Unity Walk in Barcelona

May 31,2024

Team PHenomenal Hope is bringing together experts in the science of PH, healthcare professionals, researchers, corporate partners, as well as Read More...

Addie Kozak: Four Years Old and Battling PH

November 15,2023

My daughter Adeline (Addie) was born with hypoplastic left heart syndrome (HLHS). HLHS is a complex and rare heart defect Read More...

PH Awareness Month 2023

October 31,2023

November is Pulmonary Hypertensions Awareness Month and, as always, we have something for everyone! See below all the ways you Read More...

Let Me Be Your Lungs Spotlight: Carl and Zoe

October 31,2023

Team PH board member, Carl Hicks, has been closely involved in the pulmonary hypertension community for many years. His initiation Read More...

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