
A Letter from the Board of Directors: Lenise Whitley
March 31,2023
My name is Lenise Whitley and I have pulmonary hypertension (PH) associated with left heart failure. After three years of testing Read More...

Our New Board Chair: Transition and Transformation
February 24,2023
Leading up to Rare Disease Day 2023, we caught up with Dr. Hap Farber and Dr. Patty George to talk Read More...

PHenomenal Impact Fund Reopens for 2023
January 06,2023
Team PHenomenal Hope's research program, the PHenomenal Impact Fund for Global PH Research, is reopening for the fifth year on Read More...

In Memory of Steve Hartz
July 05,2022
Our friend and member of the Let Me Be Your Lungs program Steve Hartz passed away on June 26. Steve Read More...

Race Report: Nicole Phillips and the #7Runs4Hay
May 31,2022
Growing up in St. Louis we have always been so blessed to have access to Forrest Park, which boasts around Read More...

Join the Team Today!
February 17,2022
This year is our 10th anniversary year with Team PHenomenal Hope, and we are excited about the relaunch of our Read More...

Celebrating a Decade of Serving the Community
February 11,2022
We have begun the new year with much gratitude for our community, who made 2021 a widely successful year. For Read More...

Team PH January Support Group Meeting
January 05,2022
We'd love to see you at this month's support group meeting on Saturday, January 29 at 1 p.m. CT (2 Read More...

Anthony Piatek to Take on the Quad Cities Marathon for PH Awareness
September 20,2021
Visit Anthony's fundraising page to make a donation to his efforts here. My mother, Mary Jo Piatek, passed away in Read More...

The Let Me Be Your Lungs Program: Letter from the Director
May 20,2021
We are officially in the thick of racing season! After a year of cancelled races, we are ecstatic to see Read More...

Celebrating Rare Disease Day
February 25,2021
Sunday, February 28th is Rare Disease Day. It’s a day to celebrate our rare PH community, but also celebrate each Read More...

The Black Cloud Lifted: Becky Mack
March 10,2020
2015 was not a good year. Not a good year at all. "Annus horribilis," as Queen Elizabeth would put it. Read More...

Returning to the Pioneer New Zealand - December 1-6, Queenstown
November 25,2019
In just one week, Hap Farber and I will be leaving on our next big adventure, The Pioneer New Zealand. Read More...

A Long and Winding Road: Alesia Rapkin
March 14,2019
My PH journey began in January of 2014. I was a real estate agent back then. I was out showing Read More...

Rebuilding and Embracing: Christa McNutt
December 04,2018
My name is Christa, and in May of 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (IPAH). On the Read More...
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