March 31,2023

My name is Lenise Whitley and I have pulmonary hypertension (PH) associated with left heart failure. After three years of testing Read More...

February 24,2023

Leading up to Rare Disease Day 2023, we caught up with Dr. Hap Farber and Dr. Patty George to talk Read More...

January 06,2023

Team PHenomenal Hope's research program, the PHenomenal Impact Fund for Global PH Research, is reopening for the fifth year on Read More...

July 05,2022

Our friend and member of the Let Me Be Your Lungs program Steve Hartz passed away on June 26. Steve Read More...

May 31,2022

Growing up in St. Louis we have always been so blessed to have access to Forrest Park, which boasts around Read More...

February 17,2022

This year is our 10th anniversary year with Team PHenomenal Hope, and we are excited about the relaunch of our Read More...

February 11,2022

We have begun the new year with much gratitude for our community, who made 2021 a widely successful year. For Read More...

January 05,2022

We'd love to see you at this month's support group meeting on Saturday, January 29 at 1 p.m. CT (2 Read More...

September 20,2021

Visit Anthony's fundraising page to make a donation to his efforts here. My mother, Mary Jo Piatek, passed away in Read More...

May 20,2021

We are officially in the thick of racing season! After a year of cancelled races, we are ecstatic to see Read More...

February 25,2021

Sunday, February 28th is Rare Disease Day. It’s a day to celebrate our rare PH community, but also celebrate each Read More...

March 10,2020

2015 was not a good year. Not a good year at all. "Annus horribilis," as Queen Elizabeth would put it. Read More...

November 25,2019

In just one week, Hap Farber and I will be leaving on our next big adventure, The Pioneer New Zealand. Read More...

March 14,2019

My PH journey began in January of 2014. I was a real estate agent back then. I was out showing Read More...

December 04,2018

My name is Christa, and in May of 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (IPAH). On the Read More...