Addie Kozak: Four Years Old and Battling PH

November 15,2023

My daughter Adeline (Addie) was born with hypoplastic left heart syndrome (HLHS). HLHS is a complex and rare heart defect Read More...

PH Awareness Month 2023

October 31,2023

November is Pulmonary Hypertensions Awareness Month and, as always, we have something for everyone! See below all the ways you Read More...

Let Me Be Your Lungs Spotlight: Carl and Zoe

October 31,2023

Team PH board member, Carl Hicks, has been closely involved in the pulmonary hypertension community for many years. His initiation Read More...

PH Patient Perspective Manuscript

October 30,2023

Team PH is pleased to announce the completion of the manuscipt with titled, Patient perspectives on pulmonary hypertension in the Read More...

A Letter from the Board of Directors: Lenise Whitley

March 31,2023

My name is Lenise Whitley and I have pulmonary hypertension (PH) associated with left heart failure. After three years of testing Read More...

Our New Board Chair: Transition and Transformation

February 24,2023

Leading up to Rare Disease Day 2023, we caught up with Dr. Hap Farber and Dr. Patty George to talk Read More...

PHenomenal Impact Fund Reopens for 2023

January 06,2023

Team PHenomenal Hope's research program, the PHenomenal Impact Fund for Global PH Research, is reopening for the fifth year on Read More...

In Memory of Steve Hartz

July 05,2022

Our friend and member of the Let Me Be Your Lungs program Steve Hartz passed away on June 26. Steve Read More...

Race Report: Nicole Phillips and the #7Runs4Hay

May 31,2022

Growing up in St. Louis we have always been so blessed to have access to Forrest Park, which boasts around Read More...

Join the Team Today!

February 17,2022

This year is our 10th anniversary year with Team PHenomenal Hope, and we are excited about the relaunch of our Read More...

Celebrating a Decade of Serving the Community

February 11,2022

We have begun the new year with much gratitude for our community, who made 2021 a widely successful year. For Read More...

Team PH January Support Group Meeting

January 05,2022

We'd love to see you at this month's support group meeting on Saturday, January 29 at 1 p.m. CT (2 Read More...

Anthony Piatek to Take on the Quad Cities Marathon for PH Awareness

September 20,2021

Visit Anthony's fundraising page to make a donation to his efforts here. My mother, Mary Jo Piatek, passed away in Read More...

The Let Me Be Your Lungs Program: Letter from the Director

May 20,2021

We are officially in the thick of racing season! After a year of cancelled races, we are ecstatic to see Read More...

Celebrating Rare Disease Day

February 25,2021

Sunday, February 28th is Rare Disease Day. It’s a day to celebrate our rare PH community, but also celebrate each Read More...