Global Community: Letter from the Director

May 23,2018

Team PHenomenal Hope is truly a global community that embraces the pulmonary hypertension (PH) community both domestically and internationally.

We are thrilled that our solar charger project is off the ground! On May 21st, we packed and shipped 400 portable solar chargers, panels, and batteries to the PH community in Puerto Rico who have been devastated by Hurricane Maria and recent set-backs in restoring power to the island. Team PHenomenal Hope has responded through our patient-impact fund to give PH patients with a means of power to communicate with their doctors, specialty pharmacies, and loved ones, as well as to provide other crucial needs, like keeping their medications refrigerated.

On May 5th, we celebrated World PH Day. We launched an opportunity to log miles in support of our PH community and patients through an activity tracking application called Strava. Team PH Germany logged over 10,000 kilometers (6,500 miles) from more than 150 Strava participants who biked, swam, and walked in support of PH patients. Team PH Germany was also able to raise funds for patient advocacy and programs. In the U.S., we logged over 1,041 miles and had 80 participants in Strava who showed their support for the PH community.

Our volunteer-led Pittsburgh 5K team had over 200 participants and raised its highest level of support ever at over $37,000 for programs like Let Me Be Your Lungs. Volunteers at the Pittsburgh Marathon held a wonderful event, and one of our sponsors graciously hosted a finish line party where athletes met their patients and their families.

The Team PHenomenal Hope athlete-based fundraising saw several people participate in major events, including the Boston Marathon. Another athlete-based fundraiser garnered more than $10,000, the highest amount ever for a single athlete. Our PH community and the patients we serve are grateful for this level of support.

We hope that you are inspired by what we do to build awareness and support our PH community. Please consider making a donation to support our ongoing efforts to make a difference in the lives of people with pulmonary hypertension. You may make a donation online at www.teamphenomenalhope.org or by check to Team PHenomenal Hope, P.O. Box 1115, Beloit, WI, 53512.

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