PH Awareness Month Webinars
This fall, Team PHenomenal Hope is once again bringing the pulmonary hypertension community together for a special webinar series leading up to Pulmonary Hypertension Awareness Month in November.
Join us for live webinars with experts, advocates, and patients as we share knowledge, resources, and stories that inspire hope. Plus, don’t miss our pre-recorded session releasing on September 26, available to watch anytime.
Whether you’re living with PH, caring for someone, or working in the field—you’ll gain valuable insights and connection.
👉 Register today at the links below to save your spot for the live webinars.
Together, we can raise awareness and strengthen our PH community!
World Contraception Day Webinar
Date: Friday, September 26, 2025
Format: Pre-recorded
Watch the recording here.
Overview:
On Contraceptive Awareness Day, September 26, Team PH will release a special educational webinar about the forms of birth control and making an informed decision in what is best for you. Women on certain kinds of PH therapies may be required to be on birth control, and education on the subject is crucial in empowering this population.
Speaker:
Anayah Ayoka CNM, MSN, MSEd
Senior Medical Educator, Bayer
InPHorm: Patient Tell All Panel
Title: Inclusive Trials, Equitable Care: Addressing Bias and Gaps in PH Diagnosis and Research
Date: Wednesday, October 15, 2025
Format: Virtual Patient Panel-Zoom
Panel Focus:
A discussion highlighting the lived experiences of PH patients from diverse cultural backgrounds and communities. The panel will explore how systemic barriers and bias have affected diagnosis, care access, and participation in clinical trials.
Moderator:
Natalie Weiss, BSN, RN
Nurse Research Coordinator
University of New Mexico Department of Internal Medicine
Patient Panelists:
Sattyn Salamea
Mildred Graham
Sandy Johnson
Gary Bruce
2025 Team PH Virtual Town Hall Webinar
Date: Wednesday, November 5, 2025
Time: 7:00 – 8:00 PM EST
Format: Live Zoom Webinar
Watch the recording here.
Overview:
- Current PH Research Overview
Presenter: Jason Weatherald, MD, MSc, FRCPC, University of Alberta
Description: A layman’s summary of the feasibility trial of the Canadian Right Ventricular Adaptive (CRAVE) platform, exploring therapies targeting right ventricular failure. - Navigating Disability Benefits
Presenter: Claude Skelton, Disability Attorney, Nationwide Disability Group – Skelton & Stevens - Caregiver Support, Resources & Mental Health
Presenter: Marie Argibay- Bosscasino, Information & Referral Specialist at the Mental Health Association of Monmouth - From Diagnosis to Disability
Presenter: Allyson Rupp, MSW, LCSW, ACM-SW, Stanford Health
Navigating the NIH Website and Other Resources Webinar
Date: Wednesday, November 19, 2025
Time: 7:00 – 7:45 PM EST (with time for Q&A at the end)
Format: Live Zoom Webinar
Watch the recording here.
Overview: In this webinar, our speakers will discuss the NIH website, how to navigate it, and other resources that are helpful in identifying clinical trials. We are looking forward to hearing from both the care team and patient perspective in this session.
Speakers:
Tiffani Brown, PH Patient
Tammy Keefer, PH Patient
Debbie Kittel, BSN, RN, CCRN, The Ohio State University Wexner Medical Center
Scott Visovatti, MD, The Ohio State University Wexner Medical Center
