March 24,2025

In the second video of our series recapping data shared at World Symposia on Pulmonary Hypertension (WSPH), Dr. Bradley Maron Read More...

March 12,2025

The aim of the World Symposia on Pulmonary Hypertension (WSPHA) is to foster constructive scientific interactions and collaborations among the Read More...

March 03,2025

Surprise! Mark your calendar for the 2nd Annual Where is EB? 5K and fundraiser in Santa Monica on Sunday, September Read More...

February 28,2025

The rare disease community is no stranger to changes and transitions within the insurance industry. This Rare Disease Day, we Read More...

February 18,2025

Nanette Halliburton and Lenise Whitley are cousins. They didn't find each other until they were adults, but they bonded quickly and Read More...

January 15,2025

Learning about Team PHenomenal Hope’s founding Race Across America event, Christina Mueller was deeply moved by the passion, determination, and Read More...

January 02,2025

Filling out a medical exception form is an essential step for ensuring that you receive the care and medications you Read More...

December 16,2024

The phone rang one day in mid September. Jes Ashbaucher, MBA,PA-C answered and heard the voice of a fellow adventurer. Read More...

November 20,2024

A little over four years ago I collapsed in my bedroom and almost died.  I was rushed to the hospital Read More...

November 13,2024

November 13 is CTEPH Awareness Day! CTEPH, or Chronic Thromboembolic Pulmonary Hypertension, is a form of PH caused by blood Read More...

November 12,2024

Just more than 13 months ago a dear friend of mine, April Welch, told me about this thing called the Read More...

September 26,2024

Bring your PH warrior kiddo to the final Colorado Rockies game of the season at no cost to you! Team Read More...

September 04,2024

We are again kicking off PH Awareness Month early this year with educational webinars each month leading up to November! Read More...

August 15,2024

Let Me Be Your Lungs team member Chris Thomas and his brother Brad took on the world's longest kayak/canoe race Read More...

August 07,2024

My name is Eric "EB" Borstein. On September 21st, 2020, while at home, I collapsed from massive right heart failure and Read More...