Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

Alicia Kubes

About Me/Diagnosis:

 Alicia Kubes was diagnosed with idiopathic Pulmonary Arterial Hypertension in 2018. She has experience with triple combination therapy including oral and intravenous medications as well as supplemental oxygen. Alicia is the founding leader of the PHA NYC-Manhattan Support Group, which is structured as a virtual book club open to all PH patients who are interested in discussing readings through the common lens of having a chronic illness. During the day, you’ll see her navigating the New Jersey-New York public transportation system wearing her portable oxygen to her job as an academic director at New York University.

  Career/Hobbies/Interest:

 In her free time, Alicia is a lifelong learner who enjoys taking tin whistle lessons and practicing aromatherapy.  Born in Venezuela to Guatemalan and Czech parents, Alicia is an enthusiastic traveler.  Alicia is dedicated to being a peer supporter who listens with an open heart and open mind.

  Why did you become a Peer Supporter?/How can you contribute to this role?

 Her goal is to connect with other PH patients to share tools, resources, and life experiences; talk honestly about the good and the bad; and work together to empower ourselves and others to live the best life possible. 

City/State/Contact

Alicia Kubes, alicia.kubes@nyu.edu, New York, NY.

PHenomenal Connections Peer-to-Peer Pilot Program

Fill out the form here to get started!

If you, a family member, or a friend has been diagnosed with pulmonary hypertension (PH) it may be helpful to speak with someone who has gone through a similar experience and learned how to manage the condition. PHenomenal Connections is a free Team PHenomenal Hope service that connects patients to a trained peer supporter. We invite you to volunteer!

Volunteers-Peer Supporter
Are you a PH patient who can share your experience with someone currently facing a diagnosis? PHenomenal Connections matches trained peer supporters living with PH to other patients and provides understanding and hope to those who need support after receiving a PH diagnosis. This is a rewarding volunteer opportunity to establish and build quality relationships with people who need your help.    

Patients are matched based on the type of PH, age, gender, and other factors that may foster a beneficial connection and ease of communication. Peer volunteers are trained in basic counseling skills, are regularly updated about TPH and community resources, and are committed to confidentiality.

Location
This is a virtual volunteer opportunity. Trained volunteers connect with individuals through the TPH website, via phone, email, or text.

Time Commitment
Monthly time commitment varies based on your preferences and the number of requests received. Scheduling is flexible. 

Training
PHenomenal Connections volunteers must complete training to help ensure efficiency and quality. Volunteers will gain skill-based knowledge and learn to foster collaboration, communication, and problem-solving skills while sharing coping strategies and lived experience exchange in a relaxed and informal environment.

Benefits
Peer Supporters allow fellow patients to express feelings, discuss concerns, ask questions, and form a community. PHenomenal Connections volunteers offer understanding, support, and hope. This is a rewarding volunteer opportunity for people who enjoy individual interaction, desire a flexible schedule, and can encourage those in need.

Peer Supporter Positions and Responsibilities
Peer Supporters must have a diagnosis of PH for at least five years and a willingness to listen and provide encouragement and support. Training and periodic meetings with other mentors and TPH staff are required to discuss progress, offer insight, and provide ongoing support. We seek individuals of all ages, diverse backgrounds, and/or languages.

To learn more or if you are interested in volunteering for this program, fill out the form here.

This program is supported by

Johnson & Johnson
CVS specialty logo