PHenomenal Impact Fund for Global PH Research Award Winner Announcement

July 13,2020

Team PHenomenal Hope is proud to announce the winner of the second annual award of $50,000 from the PHenomenal Impact Fund for Global PH Research.

After careful consideration, the research committee selected the proposal by Paula Menezes (pictured below), titled “Living with Pulmonary Hypertension in Latin America: A Patient’s Perspective.” The committee realized the importance of this research as it has been shown that patient quality of life is associated with increased survival. Ms. Menezes’s research aims to reveal and analyze the needs and challenges that 22,600 patients and caregivers face living with pulmonary hypertension (PH) in Brazil, Colombia, Mexico, Paraguay, and Peru. This research study will interview healthcare providers and patients as well as parents of pediatric patients to better understand patients’ quality of life and outcomes.

The unprecedented end result will enrich how public and private policies for PH patients can be developed to better impact people’s lives in the region and allow the development of a global project with Team PH to influence Latin American stakeholders in order to push them to provide the needed assistance for the PH community.

Our Research Committee Chair Dr. Hap Farber shared, “We were extremely impressed with the quality of submissions for this funding opportunity, but Ms. Menezes’s stood out to the reviewers as truly aligning with the mission of Team PHenomenal Hope, by contributing to the field of PH and also advocating for patients.”

The award was announced over the weekend during our first ever Research Town Hall, via Zoom, where prominent researchers in the field explained the latest research findings in pulmonary hypertension, and entertained questions and answers from patients, caregivers, and other members of the pulmonary hypertension community. The event was attended by more than 70 people from 10 countries.

We wish to thank all who attended and supported our virtual town hall, including our event sponsor, Acceleron. Additionally we want to thank the community for making it possible for us to award research funds through donations and fundraising through events such as the PHenomenal Hope 5K.

Story Photos

Paula, Brazil

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