Interested in helping us develop this program?

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We believe in making a lasting impact. To achieve this goal, we developed two funds that will allow Team PHenomenal Hope to serve the patient community in the short- and long-term. The short-term project is our Patient Impact Fund.

Unmet Needs Patient Impact Fund

Our Unmet Needs Patient Impact Fund is designed to address the unmet needs of people living with Pulmonary Hypertension through a series of direct-to-patient micro-grants that match the immediate unmet needs in their life. These are non-medical, but still critical needs of those living with PH.

Our goal is to provide a structure that is efficient and lightweight, meaning we have a simple application process, minimal review and distribution timeframe, and a transparent acceptance/rejection set of criteria.

In September of 2017, we opened $10,000 of this fund to victims of Hurricane Harvey in response to that catastrophic natural event, which included widespread flooding and property damage throughout the Houston area.

We spent our last money on milk, bread, batteries, and water. And that’s it.

$40,000 In Grants Awarded

Funds were shortly thereafter also assigned to those in the path of Hurricane Irma, a massive hurricane that swept over Florida, leaving millions of residents without power, and also Hurricane Maria, which devastated Puerto Rico.

Together, we raised $28,000 $39,595 $40,000 to directly assist those in need

80 Individuals Directly Helped

Through this program, we have provided direct assistance to 80 individuals living with PH in the areas struck by hurricanes in 2017.

These distributions to Hurricane Harvey, Hurricane Irma, and Hurricane Maria victims were possible because of generous contributions from those who have partnered with us in the effort:

 

PHAware logo

Blue Lips Foundation logo

Reata Pharmaceuticals

 

 

Generous donations from individual supporters who contributed through our website have played an important role.

I don’t know what I’m doing next week because I don’t have gas money to get in to the doctor. I have two days of medication left. This is a Godsend.

We had a successful program because of the unique coalition of PH advocacy groups, individual donors, and PH Support Group Leaders who stepped in to volunteer. The micro grants were meant to provide relief to members of our PH community who were struck by unforeseen but devastating hurricanes. Thank you to all who made this program possible.

Applications are now closed for this award, as all of our funds have been distributed.

Future Grant Opportunities

For 2018, we plan to open an Unmet Needs fund to a national audience after we identify corporate partners interested in helping us fully fund the program. Interested donors can also contribute today using the donate button on this page.

Donate to the Unmet Needs Patient Impact Fund

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