Pulmonary Hypertension Beyond the Pandemic: Director Letter

June 24,2021

We have some exciting news to share. Recently we held a patient focus group to select topics for our annual virtual town hall. On Saturday, July 17th we will host the 2021 Team PH Virtual Town Hall titled, “Living with Pulmonary Hypertension Beyond the Pandemic.” The patient focused topics include exercise with PH, travel with PH, and preparing for an ER visit. We will also use this time to announce the winner of this year’s research award, and will discuss the last year’s research in review. The town hall with start at noon ET and last until 3 p.m. ET. See our schedule and times in the graphic below. We would love to see many of you attend this free event. Registration is required; you can sign up now here. Stay tuned for our roster of speakers!

Our Let Me Be Your Lung athletes have been racing non-stop to raise funds and awareness for our PH community. Kathleen Richardson recently finished an 11 day, 560 mile ride on the Empire State Trail, beginning in Buffalo and ending at Columbia Presbyterian Hospital, where she was diagnosed with PH 20 years ago. What an accomplishment to celebrate! Kathleen not only completed this ride for herself, but also in memory of her late Let Me Be Your Lungs partner, Haylee York. Read more about Kathleen’s ride or make a donation to support her efforts here.

This year, our Let Me Be Your Lungs athletes have collectively raised more than $12,000 to support our Unmet Needs Patient Impact Fund and our PHenomenal Impact Fund for Global PH Research. If you would like to join our team to participate in a race virtually or live, head to teamph.org/join or contact our program manager Katie Werner at katie@teamphenomenalhope.org to learn more about this program today.

To make a donation to Team PH and support any of our patient-supporting programs, head to www.teamph.org or mail a check to Team PHenomenal Hope, P.O. Box 1115, Beloit, WI 53512. If you would like to learn about giving options such as stock transfers, IRA rollovers, and other tax advantaged giving, please contact me directly at linda@teamphenomenalhope.org.

At Team PH we are very grateful for your support and the support of our corporate sponsors and we are very excited for our future in serving the PH community. We appreciate each of you.

Linda Appleby
Executive Director
Team PHenomenal Hope

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