The Erie Canalway Trail Ride

April 14,2025

Camm Epstein is riding 330 miles over 5 days on the Erie Canalway Trail Ride in honor of his Honored Read More...

PHenomenal Hope Run/Walk- North Carolina

April 14,2025

The pulmonary hypertension community is coming together with Team PHenomenal Hope to raise awareness about PH on Sunday, November 2nd Read More...

PHenomenal Hope Run/Walk-University of New Mexico

April 14,2025

Join us Saturday, October 18th at 10 AM (registration opens at 9 AM) as the pulmonary hypertension community unites with Team Read More...

WSPH Pediatric Recap with Dr. Erika Rosenzweig

March 12,2025

The aim of the World Symposia on Pulmonary Hypertension (WSPHA) is to foster constructive scientific interactions and collaborations among the Read More...

Rare Disease Day: Understanding Insurance Formulary Changes

February 28,2025

The rare disease community is no stranger to changes and transitions within the insurance industry. This Rare Disease Day, we Read More...

Where is EB?

February 25,2025

We are excited to announce the second annual Where is EB? fundraiser will be Sunday, September 7th. A morning filled with Read More...

Nanette and Lenise: Long Lost Cousins Reunited

February 18,2025

Nanette Halliburton and Lenise Whitley are cousins. They didn't find each other until they were adults, but they bonded quickly and Read More...

HuRaCan LiTe 2025

January 13,2025

Kathleen will be taking on the Huracan bikepacking challenge on February 1st! The Hurucan bikepacking challenge is the ultimate off-road Read More...

PHenomenal Hope 5k Run/Walk- Pittsburgh

January 13,2025

The 12th Annual PHenomenal Hope 5K is set for Sunday, April 13, 2025! Please note the day change to a Read More...

Race Report: Grand Canyon Rim to Rim

November 12,2024

Just more than 13 months ago a dear friend of mine, April Welch, told me about this thing called the Read More...

The Climb to Base Camp on Mt Everest

September 27,2024

Our own LMBYL athlete, Jessica, will be taking on this challenge starting on October 5th! She will be essentially giving Read More...

PHun Day Colorado

September 26,2024

Families of PH warrior kiddos are invited to attend our second annual pediatric PHun Day event in Colorado. Join us Read More...

2024 PH Awareness Webinars

September 04,2024

We are again kicking off PH Awareness Month early this year with educational webinars each month leading up to November! Read More...

1000 Mile Canoe Race for PH

August 15,2024

Let Me Be Your Lungs team member Chris Thomas and his brother Brad took on the world's longest kayak/canoe race Read More...

Eric Borstein to Walk from Los Angeles to San Diego for PH

August 07,2024

My name is Eric "EB" Borstein. On September 21st, 2020, while at home, I collapsed from massive right heart failure and Read More...