Senior Director of Specialty Sales, CVS
Red Bank, NJ
$6,956 of $8,000 raisedSupport Christine
This is a first for me. I’ve never done an event like this and am not one to reach out to friends and colleagues for this type of help. However, I was inspired by something and someone recently. As most of you know, I’ve worked in healthcare a very long time. I’ve been involved in a number of different disease states, all in an effort to assist patients in accessing medications that are critical to managing their condition and, in many instances, are life-saving. All throughout, I’ve been blessed to come in contact with so many individuals at a variety of organizations and foundations who have dedicated their life’s work to helping these patients.
Recently, I was given the opportunity to work with the PAH team here at CVS. Through this work I had the opportunity meet a gentleman who lost his daughter to Pulmonary Hypertension. If you are not already aware, Pulmonary Hypertension is a condition of increased blood pressure within the arteries of the lungs. There is no known cure. His daughter was diagnosed at the young age of 13 and was not given long to live. Against all odds, she lived another 13 years. It is her story that has inspired me to get even more involved on a personal level.
I have teamed up with Team PHenomenal Hope to participate in their #LetMeBeYourLungs program. On April 14 I will be running in the Ukrops Monument Avenue 10K race on behalf of a young PH patient who cannot run for herself. Allow me to introduce you to a very special little girl. Meet Callie! Callie is 5 years old and was diagnosed with Pulmonary Hypertension in September 2017. Her story goes back much further than that though. She has been through more than any 5 year old should ever have to go through.
Callie was diagnosed in utero at 35 weeks with a very rare brain AVM called Vein of Galen Malformation. She went into heart failure within 24 hours of birth. This set off a rollercoaster of events that required she stay in the NICU for several months. She experienced many complications during that time and over the next several years, too many to list. Fast forward to September of 2017, one week after turning 5, Callie was admitted into the hospital and diagnosed with pulmonary hypertension. This was a huge unexpected blow to Callie and her family. She had overcome so much and beat the odds for so many other issues however, once again, she is fighting for her life.
I’ve been in touch with Callie’s mom, Nikki, and look forward to meeting them both in person very soon. Nikki has shared so much with me about Callie. Despite all she has faced, she is a happy and joyful little girl with an amazing spirit. She has a lot of fight in her and more than anything adores her big sister, Reese. I’ve been working hard at my training and fundraising and am more inspired then ever. I feel honored to represent Callie and to be her lungs when I run in the UKrops Monument Avenue race on April 14, and can’t wait to see her at the finish line. If you are as inspired by Callie as I am, below is the link to help.