Patient Profile

My PH Story

Daniel was born with two heart defects that were repaired when he was only two days old. Then, after his liver began failing, we discovered he had Biliary Atresia and needed a liver transplant. Daniel was lucky enough to receive the transplant when he was just six months old. Finally, we thought, this is it! We can bring our baby home and start a new life. But the short break only lasted six months. At barely a year old, Daniel was diagnosed with Pulmonary Arterial Hypertension.