Our Mission Statement
We provide HOPE and opportunities to those who need it most through education, research, and patient services.

For Every Person Living With Pulmonary Hypertension
Team PHenomenal Hope exists for one reason: the patient.

Pulmonary Hypertension (PH) is a rare and life-changing diagnosis. It can bring fear, uncertainty, and isolation—but no one with PH should ever have to face that journey alone.

At Team PHenomenal Hope, we stand beside patients and families, offering connection, understanding, practical support, and a community rooted in hope. Our mission is driven by real people, real stories, and the extraordinary strength of those who live with this disease every day.

A Community That Has Grown With You
We began in 2012 as four friends taking on a single challenge. But soon, patients began reaching out—sharing their experiences, their fears, their dreams. From those conversations, Team PHenomenal Hope grew into a compassionate, patient-centered organization that now supports individuals across the country and around the world.

We are here because patients asked us to be. And we’re growing because patients continue to inspire us.

How We Support Patients
Living with PH affects every part of life—emotionally, physically, and financially. Our programs are designed to ease those burdens and bring comfort and connection to families in need. We offer:

  • Financial assistance during times of hardship
  • Programs that reduce isolation and build community
  • Opportunities for patients to share their stories and raise awareness
  • Resources to help families navigate treatment and daily living
  • Events that bring warmth, joy, and understanding

Every program is built around the idea that support should feel personal, compassionate, and empowering.

Why We Fight
There is no cure yet for Pulmonary Hypertension—but hope grows each time our community comes together. We fight for patients because:

  • Your voice matters.
  • Your family deserves support.
  • Your pain should be met with compassion.
  • Your courage inspires innovation.
  • Your hope fuels our mission.

Patients shape everything we do. They always have—and always will.

Standing Together With Other PH Organizations
The Pulmonary Hypertension community is small but deeply connected. We are proud to work alongside organizations that share our commitment to supporting and uplifting patients.

phaware
phaware brings global attention to PH through innovative technology, storytelling, and outreach. Their “I’m Aware That I’m Rare” podcast and digital tools help patients and families connect, share experiences, and raise awareness. We deeply appreciate their creativity and commitment to elevating patient stories.

Pulmonary Hypertension Association (PHA)
PHA offers resources, support groups, advocacy, and research programs. Between 2014 and 2016, Team PHenomenal Hope raised and donated more than $100,000 to support PHA’s research efforts.

These partnerships remind us that when organizations collaborate, patients benefit most.

Partner With Us
If your organization would like to stand alongside the PH community and help us expand patient programs, support research, and deliver hope, we welcome the partnership.Please reach out to our Executive Director, Leslie Orlovsky, at Leslie.Orlovsky@teamphenomenalhope.org.