Racing Through Summer: Letter from the Director

July 29,2020

Five months into the COVID-19 pandemic and it is hard to think that summer is halfway over. The summer has looked vastly different from what we had planned, but we have pivoted and come up with some novel ways of continuing our efforts amidst our new normal.

We responded to requests for information regarding clinical trials for PH patients and held our very first Virtual Research Town Hall on July 11. More than 109 participants representing 10 countries, including patients, caregivers, medical professionals, and industry learned about clinical trials and new research. Presenters included last year’s winner of the PHenomenal Impact Fund for Global PH Research award, Vineet Agrawal.

During the town hall we were delighted to announce our 2020 research award winner, Paula Menezes! Learn more about Paula’s winning proposal here. You can read short bios of our current and past winner here.

Our PHenomenal Impact Fund for Global PH Research is supported through the generous efforts of volunteers in the community who host events like the PHenomenal Hope 5K, Callie’s Gaming for a Cure, the JonTron Live Charity Auction, the Let Us Be Your Lungs 5K, and the PHfreinds4Life Concert in the Park.

At the end of June the PHenomenal Hope 5K brought in more than $35,000 to support our mission, despite the event being moved to virtual. Even a pandemic could not deter the support from our community, and for that, we are eternally grateful. Many thanks to our event organizer Kayla Frattini for putting her heart and soul into making this event fun, engaging, and successful.

At Team PH we are busy planning for the remainder of 2020 and 2021 to continue to serve the PH community. We would like to thank our board of directors and our 2020 corporate sponsors Actelion, CVS Specialty, Bayer, United Therapeutics, Acceleron, and Reata for their contributions to support the work we do at Team PH to serve and improve the lives of those with PH.

Your financial contribution is what enables us to continue our mission. Make your donation online at www.teamph.org or by check to Team PHenomenal Hope, P.O. Box 1115, Beloit, WI 53512. If you would like to learn about giving options such as stock transfers, IRA rollovers and other tax advantaged giving, please contact me directly at linda@teamphenomenalhope.org.

Linda Appleby
Executive Director
Team PHenomenal Hope

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