A Hard Hitting September

September 21,2017

Letter from the Director

September 2017

September rolled in hard with earthquakes in Mexico and four (and still counting) massive hurricanes that pummeled the Gulf, Florida, and the Carribean.

Under the direction of our Board of Directors, just before Labor Day weekend, Team PHenomenal Hope released $10,000 in aid for those with PH who were impacted by Hurricane Harvey, and began dispersing relief funds via PayPal within 48 hours of program initiation. This is part of our Unmet Needs Patient Impact Fund program, which is designed to help address the unmet needs of those with PH around the United States.

This amount was quickly matched as partners in the PH community reached out to us to assist the community – $10,000 from phaware global association, $5,000 from Blue Lips Foundation, and $2,000 from Reata Pharmaceuticals, as well as over $1,600 in donations from individuals who contributed through our website.

Help us help PH patients affected by Hurricanes Harvey & Irma. Donate to replenish this fund today.

Donate

Together, $28,000 was raised to distribute to those with PH living in the aftermath of Hurricanes Harvey and Irma in Houston and Florida.

We have distributed funds directly to the patients who have applied for the program. These dollars are being used to help overcome the crushing heat and humidity, supply much needed food and water or temporary transportation, and provide other critical needs for PH patients.

Applications for those in the Houston area and throughout Florida are still being accepted. If you are in those areas and interested in applying, please visit teamph.org/unmetneeds to learn more.

Team PHenomenal Hope will continue to focus on further developing our Unmet Needs Patient Impact Program. We are working with sponsors and coprorate donors to replenish and grow the fund. Our goal is to be able to open the program for applicants around the United States who have unmet needs related to their PH – regardless of natural catastrophe. Stay tuned!

Thank you to all who have contributed to help this effort succeed. It could not have been done without our PH family coming together!

Please visit those who partnered with us to provide relief to those who have been through hurricanes Harvey and Irma:

PHAware logo

http://www.phaware.global

Blue Lips Foundation logo

http://www.bluelipsfoundation.org/

Reata Pharmaceuticals

https://reatapharma.com/

Mexico Earthquake

I want to finish with a note about the recent 7.1 magnitude earthquake which struck near Mexico City, Mexico on Sept 19th, killing 237 people.

Our hearts hurt for our brothers and sisters on Team PH Mexico for the sudden loss and destruction so close to their great nation’s capital city, and we hope and pray for the safety of each of them and their loved ones. I ask that you please remember them in your prayers and decisions on charitable giving. Maricela Arevalo Arce, team captain of Team PH Mexico, who races for her sister, has been in touch with updates. Mashable has a brief list of aid relief organizations working to assist in the area. That list is at: http://mashable.com/2017/09/19/help-mexico-earthquake-donations/#06iQk7AYELqk

Thank you,

Chris Field

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