Where is EB?
February 25,2025
We are excited to announce the second annual Where is EB? fundraiser will be Sunday, September 7th. A morning filled with Read More...
Crested Butte Ultra
September 27,2024
Our own LMBYL athlete, Jenn will be taking on this challenge in honor of her PH patient hero, Kristen! Please Read More...
A Mother's Intuition
November 21,2023
My oldest child Abby was almost eight months old. I had been taking her to the doctor telling them something Read More...
Anthony Piatek to Take on the Quad Cities Marathon for PH Awareness
September 20,2021
Visit Anthony's fundraising page to make a donation to his efforts here. My mother, Mary Jo Piatek, passed away in Read More...
Grateful for my Care Team: Daniel Kolopajlo
May 19,2021
I'd like to take this time to share how my team of professional nurses and doctors have impacted my life. Read More...
What I Have Learned in 10 Years: Deziree Rivera
August 14,2020
I have lived with idiopathic pulmonary arterial hypertension for nine and a half years. In those nine years I have Read More...
My Daughter, Diagnosed at Eight Months Old: Amanda Howard
January 28,2020
My name is Amanda Howard. I first learned about pulmonary arterial hypertension (PAH) when my daughter Abby was eight months Read More...
Rebuilding and Embracing: Christa McNutt
December 04,2018
My name is Christa, and in May of 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (IPAH). On the Read More...
Changing My Diet to Manage My Disease: Jimmy Wilson
October 11,2018
Up until May of 2017, I was a husband, father, and deputy sheriff. On May 19 of that year, I Read More...
My LetMeBeYourLungs Experience: Lynn Bastian
January 22,2018
My name is Lynn Bastian. I am 63 years old, and was diagnosed with Idiopathic Pulmonary Arterial Hypertension on October Read More...
My PH Story: Socorro Rivera
November 14,2017
I have been living with the terminal disease known as Idiopathic Pulmonary Arterial Hypertension (IPAH). I have found there is Read More...
Brenda McCowan: My PH Story
September 26,2017
My story about Idiopathic Pulmonary Arterial Hypertension began in the summer of 2012 with obvious symptoms. I had always mowed Read More...
Brooke Evans PH Story
August 16,2017
Hi, my name is Brooke Evans. I live in Australia and here is my PH journey thus far. I was Read More...
Brooklyn Clasby's PH Story
June 20,2017
Brooklyn Clasby is a 10 year girl formerly from Colorado. Brooklyn was diagnosed with Idiopathic Pulmonary Arterial Hypertension in February Read More...
Lorraine Smith Robbins' PH Story
March 08,2017
I live in Warrington, PA I first heard the words Pulmonary Hypertension on November 13th, 2012. To say our lives Read More...