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Stories of PH

Home > Archive by Category "Stories of PH"

These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.

Remembering Ray Fred Earley, by Beverly Earley

January 30,2023

It’s time to celebrate my dad, Fred Earley. He was born in Lander, Wyoming to the parents of Alberta Alice & Read More...

Diagnosis and COVID-19 Obstacles: Darlene Serrano

May 18,2020

After two days of Hurricane Maria I started to feel sick. I was short of breath and fatigued; it felt Read More...

Life Needed to Change: Tina Brincko

May 12,2020

Hello, my name is Tina Brincko and I’m from Lake Mary, Florida. I have three amazing children and a loving Read More...

I am a Medical Unicorn: Jessica Kiser

March 17,2020

I was only 26 when I was diagnosed with pulmonary arterial hypertension (PAH) associated with hereditary hemorrhagic telangiectasia (HHT). I Read More...

Moving Cross Country with PH: Jean Robart

March 13,2020

My journey with pulmonary hypertension (PH) began a few years after I first heard the words pulmonary hypertension. I was Read More...

I love my Support Group: Irene Dellaro

March 03,2020

My journey with pulmonary hypertension (PH) started back in September of 2010. I was laying in my bed with a Read More...

Nikki Richard

Here to Bring you Hope: Nikki Richard

February 27,2020

My story starts like most patients living with pulmonary arterial hypertension (PAH). One day I became short of breath without Read More...

Thriving with PH: Shannon Morrison

February 18,2020

My daughter Shannon is an eight year old identical twin with a vivacious passion for life and incredible strength. When Read More...

Years of Misdiagnosis: Tiffany Ray

February 13,2020

I was diagnosed with PH after years of misdiagnosis. When my symptoms started, I was sent to a psychologist for Read More...

Lifestyle Changes: Trace Cluck

February 11,2020

Living with complications from CTEPH has been difficult to say the least. In February of 2019 I had to step Read More...

30 Years of Dormancy: Linda Cantrell

February 04,2020

I was born with pulmonary hypertension. Unlike the majority of people with PH, mine didn’t develop over time. When I Read More...

My Daughter, Diagnosed at Eight Months Old: Amanda Howard

January 28,2020

My name is Amanda Howard. I first learned about pulmonary arterial hypertension (PAH) when my daughter Abby was eight months Read More...

My PAH Diagnosis: Suzanne Miller

January 16,2020

When I was 16 I discovered the "Diet Doctor." I lived in an affluent community where vanity was more important Read More...

Breathing Life with CTEPH: Kristin McCoy

January 14,2020

The first part of my life was awesome, for the most part. I joined the rescue squad and became an Read More...

My PAH Diagnosis: Kevin Green

January 09,2020

My name is Kevin Green. I’m 49 years old and diabetic. In March, 2019 my doctor started me on a Read More...

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