These are posts from patients or caregivers .. or even athletes … relaying their experience dealing with PH. Usually, it is a patient telling their PH story (how they got it & medication they use) but it could be anyone’s experience with PH.
My Daughter's Journey to Diagnosis and Finding the “New PH Normal”: Pam Minkey
March 05,2018
My daughter Mara is a beautiful young girl who was diagnosed with idiopathic pulmonary arterial hypertension on February 24th 2017 Read More...
Georgia Thomas' PH Story
February 28,2018
Georgia was born 3/31/04, as a big and seemingly healthy baby to very excited first time parents Genie Priddy and Read More...
Nikki Linscott: My Daughter's PH Story
February 19,2018
In the summer of 2017, we noticed that our usually lively daughter Callie was seemingly less energetic than she used Read More...
Liège Gautério: My Transplant Story
December 14,2017
My name is Liége Gautério, and I am a 44 year old Brazilian. I work in physical education, but I Read More...
Melanie Kozak: My PH Story
December 06,2017
I was diagnosed with Pulmonary Hypertension in 1998 when I was 22 years old. It took an entire year and Read More...
My PH Story: Marilyn Rampersad
December 04,2017
My name is Marilyn Rampersad. I am a 29 year old mother of two sons; a four year old and Read More...
My PH Story: Socorro Rivera
November 14,2017
I have been living with the terminal disease known as Idiopathic Pulmonary Arterial Hypertension (IPAH). I have found there is Read More...
My Year in Review: Melissa Callas
November 02,2017
Life has been a struggle without Devon. After he passed away, I was immediately drawn to Team PHenomenal Hope. I Read More...
Paula Menezes: Guided By Love
September 06,2017
Todos que me acompanham na Abraf sabem da minha entrega a esta causa. Por mais difícil (algumas vezes, quase impossível) Read More...
Karen Wright's PH Story
September 04,2017
To use the term “Hit the wall” would be the best way I could describe the situation that changed my Read More...
Deborah Webster's PH Story
August 30,2017
I’m Deborah and this is my PH story. In the months leading up to this life changing diagnosis, I had Read More...
What #LetMeBeYourLungs Means To Us: The Clasby Family
August 22,2017
Our 10 year old daughter, Brooklyn, was diagnosed with Idiopathic Pulmonary Hypertension when she was 3 years old. After complaining Read More...
Brooke Evans PH Story
August 16,2017
Hi, my name is Brooke Evans. I live in Australia and here is my PH journey thus far. I was Read More...
Abigail Lynn Howard's PH Story
August 14,2017
My Name is Mandy Howard, my daughter is Abigail Lynn Howard. She was diagnosed when she was 8 months old Read More...
Rad Am Ring 2017: A Patient's Perspective
August 07,2017
When I got my diagnosis in 2009, I wasn’t the only one affected by this disease. My partner Erik, my Read More...
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